Today I sat today like any other day: at my kitchen counter, fielding calls from families looking for ABA services for their kids, having to tell some that they have no ABA coverage on the insurance they pay a ridiculous amount a month for. Telling others that we don’t have staff for them and they need to wait months for services to begin because we are drowning in cases and the supply of analysts doesn’t meet the demand. Waiting on hold for hours to speak to a human at the insurance companies that can tell me why authorized claims are being denied to these families. Dealing with “doctors”that are telling families that can’t get a diagnosis until age six or are writing referrals with a diagnosis of “Behavior Problem” (Really? Can I get an ICD code on that, Dr. Mensa?). Advising parents to get on the medwaiver wait list immediately as it is at about 22,000 and counting here in the Sunshine State. MAYBE in 12 or 15 years, you will get approved. Suggesting they see if they qualify for social security so they can get Medicaid coverage to pay for the ABA. Most have no idea what I’m talking about. I’ve had moms tell me they got more information from me in 10 minutes on the phone than they have in the past few months since diagnosis.
Some days, I log off and cry at the enormity and injustice of it all.
Just another day at the office.
Except today was different. Typically, I have Pandora on in the background . . . but not today.
Today I listened to Californians who made the trip to Sacramento from all over the state wait their turn to stand in front of California state Senators and express their objection to SB277.
If you are having trouble viewing this video click here, or copy and paste this url into your browser:https://www.youtube.com/watch?v=2S5–UNE1sA&feature=youtu.be
Doctors. Educators. Researchers. Lawyers. Small business owners. Advocates. Children. Public Servants. Military wives. Veterans. Moms. Dads. Citizens.
All opposing this disgusting bill.
And as I listened while on hold with Aetna
(after being transferred to another department . . . AGAIN) I found myself crying combo tears. Sad that it’s come to this. Sad for the families that testified to experiencing vaccine injury firsthand . . . but I also felt proud. So proud. Proud of these people that are taking a stand. Proud of the people that couldn’t come because they are home taking care of sick children, but sent testimony, calls and emails. Proud of the people that think for themselves. Proud that people are waking up. Proud to see a glimmer of what America means to me.
There ultimately was no vote today. So many senators had issues with the language and questions about the bill, Pan was given a free life. If they voted today, this bill would be dead — as it should be.
The lines of people that showed up today deserved a vote. I hope they do the right thing next Wednesday.
For now, I’m going to revel in the pride buzz.
Thank you, Thinking Californians.
For more by Poppy, click here.