I usually dress the kids. Until recently I hadn’t even considered that my son might be able to choose clothes for himself because last year, the one time he tried, he picked out his Superman pajama top and matched it with the tuxedo pants from the very back of his closet (yes, the ones he wore at my brother’s wedding the previous year). And to go with this adorable ensemble, he had picked the flip flops. Only it was February. We live in Canada. And negotiation didn’t stand a chance. Needless to say that day was a disaster.
Fast forward a year. About a month ago, as my husband and I were discussing our plans for the day, I didn’t notice that the kids had gone upstairs. They do that lately, hang out together. My son is enjoying the company of his little sister more and more, and my daughter (four going on thirteen) is just so happy she has someone to boss around! Although she is four, her play skills are much more advanced then those of her brother, and she is actually turning out to be a wonderful play therapist for him.
So that day. . . if we parents know one thing, it is that when the house gets too quiet, something’s up. As soon as we realized it was too quiet, my husband and I froze, jumped out of our chairs and flew upstairs to find D’s entire closet, shoes, socks, underwear, books, toys scattered all over his room, his sister by his side. They were quietly waiting in the middle of this mess staring at us with their “we did not do this” expressions, sitting on the bed that had also been stripped of covers.
BUT… to my great surprise, D was all dressed: color matching, socks and shoes for the right season. All of it, thank you very much. I couldn’t believe it.
The entire scene was so amazing, so unusual for our kind of reality. SO TYPICAL!
Not only had he listened to our conversation and understood we were going out, but he had gone up on his own, planned ahead, chosen his clothes and gotten dressed.
All. On. His. Own.
It hit me that day, at that moment, there are so many things we take for granted; we trust, expect, anticipate, assume and believe certain things will happen when we do this or that or when we do nothing at all. Big things like: turn the key and the car will start; punch a number on the the smartphone and you will be connected. But then there are the smaller, more subtle things — the things that are such big challenges for special-needs kids. There are things about our children that unless you live it you may never understand. Most people really don’t understand how our children need help with the simplest tasks like brushing their teeth, washing themselves, getting dressed or undressed, general hygiene, homework. Those little things that most people take for granted mean the world to a special-needs parent. The past year has taught me to never take for granted the things my child has overcome. Every meaningful look, smile, giggle, question, transient neurotypical moment. I soak them all up and hope they stay.
And even with so many obstacles to overcome, our children work day in and day out and they never give up. So why should we? I know we still have a long way to go but I will never EVER give up on him.
And as I watch my son slowly come out of his shell, and come into his own, I never forget that some of you out there are still waiting for the first “mama,” the first step, or the first look, because I too was there. And I don’t take any of it for granted. This journey has taught me a lot about appreciation for the little things and to celebrate each small victory knowing how precious they are.
In this video, parents, friends, cousins and siblings share a message about the things we don’t take for granted.
If you are unable to view the video, please click here. Alternatively, please copy and paste this URL on your browser http://www.youtube.com/watch?v=IPPRqkEnfi8
~ Prima
For more blogs by Prima, please click here.
An excerpt from my son’s recovery video that I am almost finished making:
. . .So we push forward & stay 100% dedicated. We focus on achievements, no matter how small. Because each tiny little victory brings SO much joy. But collectively, they give us HOPE. That we CAN do everything it takes to bring him back. To heal his body & mind. To help him find his voice. . .
Celebrate the small stuff. Eventually, over time, it adds up and next thing u know you’re celebrating the big stuff!
When my son couldn’t speak, I promised myself that I would never tell him to be quiet or stop talking. Never. EVER.
Now, I find myself sometimes at midnight, 1AM, even 2AM still in his room, sitting by his bed, exhausted, listening to him ramble on & on about various topics as he tries to fall asleep. . . not taking a single word for granted.
Beautiful video! I can’t wait for those moments to happen for us.
Prima…you have some MAD video skills. I’m crying in my coffee and thinking of all of the things I DON’T take for granted and some of the things that I shouldn’t but do. Thank you for the beautiful reminder to focus on the progress.
Thank you <3
Thank you. The popup ad seem to be Gone. I may read in Peace. Thankyou
Love Love Love the video! awesome. So fun about the clothes. Can’t wait for that to happen for us.
Thank you Prima 🙂
Thank you!!!!
I never thought we’d get there but we did, It Will happen!
First of all, congratulations to your WHOLE family on this accomplishment. Reading this warmed my heart and brought a smile to my face!
The video was absolutely beautiful. Thank you so much for sharing so much of yourself and your family with the world. Your message is so vitally important and helpful. I not only applaud what you’re doing, but stand and cheer for you and all the other families out there who are so brave and courageous.
Thank you. Again, absolutely beautiful!!
Penny at Green Moms and Kids
Thank you so much!! Our kids are such an inspiration! May we always have the opportunity to celebrate them and allow them to shine. xoxo
I’m sure no one here will be surprised to read
“Vaccine Injury Gives Rise To New Syndrome” at http://realfoodforager.com/vaccine-injury-gives-rise-to-new-syndrome/
Actually 4 new syndromes. All linked to vax and adjuvants
PRIMA! You have me bawling, and now I have to drive across town to school! Beautiful!!! xoxoxo
<3