As my family is marching down the path toward recovery, I have been pondering what comes next for my kids. What am I going to be doing after they achieve functional recovery? We’ve addressed or are addressing toxins, pathogens, gut/immune system, and brain function. The road has been really, REALLY hard, but all of our efforts are paying off. I am confident the end of the journey is near.
Recovery? Has Sugah lost her mind? Isn’t a recovered child the stuff of legend like the unicorn or bigfoot? LMAO!! Sugah is definitely a little crazy, but totally sane when it comes to autism recovery. And I am confident of it. But I remember very clearly the dark days of uncertainty.
TMR recently posted this from Treating Autism on our FaceBook page. It is a document designed and written for traditional medical professionals. It speaks in their language and addresses the long list of potential underlying medical conditions potentially existent in children with the diagnosis of autism. You’ll notice they didn’t directly address the concept of causality which is smart because we all know that traditional medical folks stop listening when you talk environmental factors. They definitely stop listening when you talk about vaccine injury. So I highly recommend everyone prints out numerous copies to take with them each time they darken the door of any medical establishment. This document can also be used as a checklist of sorts. If you are on the path of recovery and are stalled out or are simply plotting a list of next possible moves, this list could be used as a ‘sanity check’ to know if you’ve considered all the potential underlying medical issues with your child.
I would also encourage you to consider thinking ‘differently’ about the journey to recovery. If you are in a place where you feel like you’ve “tried everything and nothing is working!”….trust me…you haven’t tried everything. It is easy to get caught up in the circular trap of testing-diagnosis-treatment. I remember experiencing short-lived improvements and deflated hopes. The definition of insanity is doing the same thing over and over and expecting a different result.
I was inspired by last week’s guest blogger, Cobra. In her blog, she talked about her experience trying something new, Qigong, which had amazing results for her son, because she started asking new questions and thinking differently.
My boys biggest gains and our path to true healing and recovery began after I took a big leap of faith. I won’t bother to write out the story here because our story is identical to the one told by Poppy in Voodoo Magic Sugar Pills.
So back to pondering what comes after recovery.
Every ending is a new beginning. So what comes next? I don’t think it’s wise to attempt to put autism in your rear view mirror and never look back, (not that you really could). Many autism parents have a close understanding of what it is like to have PTSD. I remember clearly one night hearing my son awake at 3am. We had enjoyed many months of full night’s rest following what felt like years of night-wakings. That night I awoke with a racing heart. I was completely panicked that we were going ‘back’. Back there. Back to the dark place of sleepless nights and knuckle-dragging days. NNNOOOOOO!!!!!! I had to calm down to realize that his waking was merely a temporary reaction to something we were doing to remove the environmental damage caused by vaccines, maternal dental amalgams, our chemical laden food supply, etc etc etc.
We have conditioned ourselves to observe our children on a daily basis like Jane Goodall with a pack of gorillas. We watch their every move, response to stimuli, making correlations to the ever changing balance of our bodies’ internal ecosystems and drawing conclusions as to what changes need to be made, if any, to their physical environment, diet, supplemental or detoxification regimes. Is it possible to just turn all this off like a light switch once recovery happens? I think not. I think there must be a shift from recovery/reprogramming to immune system maintenance.
“He took an unexpected downturn.”
Either I’m hearing this message more often, or perhaps I’m just now paying attention. There’s a PTA mom I know who had a high-functioning nephew — so high he barely had autism. Out of the blue last year he got sick and can no longer speak. He had an unexpected downturn. He was eleven years old. “The doctors think he must have some sort of virus.”
Then there’s Elizabeth Wray. She lives in the far northeastern US near the Canadian border on a farm. She was a normally functioning teenager. Shortly after her parents brought home a new flock of sheep, she began experiencing extreme PANDAS symptoms. At last report, she was the resident of the psych ward at Children’s Hospital in Boston. Apparently BCH doesn’t recognize PANDAS as an illness that can be treated and therefore considers psych ward placement as the only logical place for her. She took an unexpected downturn.
Then there’s Alex. His mom had been dutifully loving and caring for him, making sure she avoided his numerous food intolerances as she prepared his meals. But one day something happened. Something changed in his internal ecosystem that caused a disruption in his sleep cycle and he began experiencing gastro intestinal distress. All of this began to severely impact his neurological function and behavior. He took an unexpected downturn. These children and their parents are living the nightmare.
I don’t want to live forever in fear of the unexpected downturn. It’s clear to me that achieving functional recovery is not enough. I will need to devise a plan to ensure the ongoing health and optimal functioning of my son’s immune system. His internal ecosystem will need to stay appropriately balanced so that when (not if, but when) it incurs pathogen X, his body will be ready so he doesn’t experience the unexpected downturn.
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