Tag Archives: IACC

CALL TO ACTION: We Need YOUR Input!

July 22, 2018 CALL TO ACTION! WE NEED THREE MINUTES OF YOUR TIME TO FILL OUT A SURVEY! PLEASE SHARE WITH ALL YOUR NETWORKS! CRITICALLY IMPORTANT! A meeting of the Inter-Agency Autism Coordinating Committee (IACC) When the Centers for Disease … Continue reading

Pin It
More Galleries | 3 Comments

To the IACC: Feel the Frustration of the Community You Are Meant to Serve

This gallery contains 1 photo.

July 12, 2016 The Interagency Autism Coordinating Committee (IACC) will be meeting on July 19, 2106. In the past, we at TMR have been highly critical of this committee and its lack of impact on the autism community. Well over … Continue reading

Pin It
More Galleries | 19 Comments

IACC, January 2106: TMR President Megan Davenhall’s Written Testimony

January 13, 2016 Yesterday, the Interagency Autism Coordinating Committee met for only the second time since September of 2014. The IACC is the closest thing the federal government has to oversight on the exploding incidence of autism. Unfortunately, though the … Continue reading

Pin It
More Galleries | 10 Comments

Federal Autism Policy: Big News and Action Alert!

This gallery contains 1 photo.

January 12, 2016 Spring of 2014, I sat in a conference room in Washington, D.C. with two other representatives of the newly formed Autism Policy Reform Coalition (APRC) and five highly paid lobbyists from Autism Speaks. We were there in … Continue reading

Pin It
More Galleries | 7 Comments

James Williams, an Adult with Autism, Speaks about His Medical Issues

This gallery contains 2 photos.

At the AutismOne Conference in 2013, I met James Williams, an adult with autism who speaks around the country, a professional recorder player and music technician, and the author of two novels on autism, Out to Get Jack, and The H.A.L. … Continue reading

Pin It
More Galleries | 12 Comments

TMR to the Interagency Autism Coordinating Committee: We’ll Be at Every One of Your Meetings

This gallery contains 2 photos.

TMR goes to Washington:  TMR President, Megan Davenhall, a.k.a. Sunshine, spoke to the Interagency Autism Coordinating Committee during their workshop on co-occurring conditions.  This is her testimony, based on readers’ replies to a survey we ran.   “What we’re here … Continue reading

Pin It
More Galleries | 23 Comments

Thinking Moms Speak Out to the IACC!

This gallery contains 4 photos.

Today the Interagency Autism Coordinating Committee (IACC) will be meeting for a workshop exploring Under-Recognized Co-Occurring Conditions in Autism Spectrum Disorder (ASD). You can watch it LIVE here: http://videocast.nih.gov Be sure to tune in around 12:45pm EST for our own Sunshine and … Continue reading

Pin It
More Galleries | 4 Comments

TMR IACC Survey for Input on Public Comment

This gallery contains 1 photo.

Thinking Moms’ Revolution and TEAM TMR are composing a public comment for an upcoming IACC (Interagency Autism Coordinating Committee) Workshop. Per the IACC website: The workshop will focus on a range of co-occurring health conditions in individuals with ASD that are … Continue reading

Pin It
More Galleries | Leave a comment

CALL TO ACTION! Your Chance to Change the Course of Autism

This gallery contains 4 photos.

CALL TO ACTION! The House version of the Combating Autism Act is a mediocre bill being fast-tracked to a committee vote. In 8 years not one case of autism has been prevented, and no treatments have surfaced after spending $1.6 … Continue reading

Pin It
More Galleries | 6 Comments

Just Show Up

This gallery contains 5 photos.

“Hope begins in the dark, the stubborn hope that if you just show up and try to do the right thing, the dawn will come. You wait and watch and work: You don’t give up.” ~Anne Lamott I am just … Continue reading

Pin It
More Galleries | 22 Comments